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This privacy policy tells you about the information we collect from you when you use our services, access our website or interact with us via email, phone or email. In collecting this information, we are acting as a data controller and, by law, we are required to provide you with information about us, about why and how we use your data, and about the rights you have over your data.

1 Who are we

We are Helen Rollason Cancer Charity. Our address is Yvonne Stewart House, The Street, Hatfield Peverel, Chelmsford, Essex, CM3 2EH. You can contact us by post at the above address, by email at dpo@helenrollason.org.uk or by telephone on 01245 380719.

2 The type of personal information we collect

We currently collect and process the following information:

  • Basic personal identifiers such as name and contact details of those who have contact with us via our website enquiry forms, email address, newsletter sign up forms, engage with us on social media or who attend our fundraising activities, donate to us, work or volunteer for us, or are referred to or use our services
  • Social and health data of service users where relevant to enable us to provide our service (such as medical health data, GP contact details, disabilities, and other services involved)
  • Family members names and contact details of our service users where relevant to the service we provide, such as names and contact details of emergency contacts.
  • Ethnic background data of our service users
  • Information required to process people who work or volunteer for us such as National Insurance Numbers, bank details and DBS records
  • Basic contact details of people who donate to us and participate in fundraising activities

3 How we get the personal information and why we have it

Most of the personal information we process is provided to us directly by you for one of the following reasons:

  • To access one of our services
  • To sign up to our mailing list
  • To volunteer or donate
  • To participate in fundraising activities
  • Contact us via email, our website enquiry form, by phone, or on social media
  • To work or volunteer for us
 

We also receive personal information from the following sources in the following scenarios:

  • Referral to our services from other agencies with your consent
 

We use the information that you have given us:

  • To provide our service safely to our service users
  • To ensure our services are providing equal opportunities, good value for money and are best serving the community
  • To respond to complaints and enquiries, and send out requested newsletters
  • To contact people who have attended fundraising events or donated regarding future support
  • To pay our staff

 

We do not share your information with anyone outside of the Helen Rollason Cancer Charity without your consent, with the exception of appropriate agencies when there are serious safeguarding concerns.

Under the UK General Data Protection Regulation (UK GDPR), the lawful basis we rely on for processing this information are:

  • We rely on legitimate interests for processing data relating to our fundraising activities, social media engagement, newsletters, and dealing with general enquiries.
 

 We rely on Legal Obligation and Health and Social Care Purposes (Schedule 1) as our lawful basis for processing employee and volunteer data, including DBS checks.

We rely on consent and Not-for-profit bodies (article 9) to process data relating to our service users, including the special category of health and social care data. You are able to remove your consent at any time. You can do this by contacting: dpo@helenrollason.org.uk.

4 How we store your personal information

Your information is securely stored on encrypted electronic systems that can only be accessed by authorised employees of the Helen Rollason Cancer Charity. Approved volunteers have restricted access to a limited amount of information that they require to provide our service.

We keep contact details of people who have participated in any of our fundraising activities, engaged with our social media, requested newsletters, or made general enquiries for seven years from the point of last contact. We will then delete their personal data from our electronic system. We destroy any paper copies immediately once they have been uploaded onto our system (within one working week).

We keep employee and volunteer data for seven years from the last date they worked or volunteered with us. We will then delete their personal data from our electronic system. We destroy any paper records immediately once they have been uploaded onto our system (within one working week).

The exception to our employee and volunteer data retention period is with regards to DBS checks. As soon as we receive a completed DBS check we make a record of the date and the outcome without any further details, and then destroy the original.

We keep data relating to our service users for seven years from the last point of contact. We will then delete their personal data from our electronic system. We destroy any paper copies immediately once they have been uploaded onto our system (within one working week). There may be times we wish to retain data in order to analyse or improve the service we provide. If we wish to retain data in this way it will be fully anonymised after the standard retention period so that it no longer contains any personal data.

We will review data we hold on a regular basis to ensure we remove any data that is no longer necessary.

5       Your data protection rights

Under data protection law, you have rights including:

  • Your right of access – You have the right to ask us for copies of your personal information.
  • Your right to rectification – You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
  • Your right to erasure – You have the right to ask us to erase your personal information in certain circumstances. However, there are some circumstances where we are legally required to retain your information (for example for historical Gift Aid claims).
  • Your right to restriction of processing – You have the right to ask us to restrict the processing of your personal information in certain circumstances.
  • Your right to object to processing – You have the right to object to the processing of your personal information in certain circumstances.
  • Your right to data portability – You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.
  • You are not required to pay any charge for exercising your rights.

 

If you make a request, we have one month to respond to you.

Please contact us at dpo@helenrollason.org.uk if you wish to make a request.

 6 How to complain

 If you have any concerns about our use of your personal information, you can make a complaint to us at Yvonne Stewart House, The Street, Hatfield Peverel, Chelmsford, Essex, CM3 2EH.

 You can also complain to the ICO if you are unhappy with how we have used your data. The ICO’s address: Information Commissioner’s Office Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.

Helpline number: 0303 123 1113.

ICO website: https://www.ico.org.uk.

Tom Carr

I worked as a urologist with a special interest in cancer until my retirement in 2016. The patient journey with a new cancer is now often long and complex. Many need help to live their best life after treatment. Simple survival and the absence of cancer is not enough, feeling well and whole again is the goal. Social and psychological support makes all the difference. I am happy to help Helen’s charity to deliver that.

Kully Byatt

I have retired following a career at a senior management level in a range of sectors specialising in Human Resources, Project Management, Coaching and Mentoring skills. In addition since 2000 I have undertaken a number of voluntary Trustee roles for a range of organisations.

Through my desire to give back to a Charity that my mother personally benefitted from by utilising Complementary Therapies, I have for a couple of years volunteered for Helen Rollason Cancer Charity in the Retail Team and more recently this has inspired me to take up the role of Trustee so that I can contribute to the governance of HRCC in continuing to deliver vital services that benefit the community.

Jacqui Goulbourn

I’m a qualified accountant with over 20 years experience working in the NHS in Essex and beyond.  I know how vital charities in the healthcare arena are, to fill in where government funding doesn’t reach.  As a volunteer Trustee, I am pleased to be able to offer my skills and experience to help HRCC deal with these challenges, allowing staff to have a greater focus on providing services to the clients.

Friederike Englund

I am a cancer nurse by background and have supported those affected by cancer for over thirty years. I have worked very closely with the team at Helen Rollason and have seen the tremendous benefit and improvement in wellbeing that patients and carers experience through the support they receive. I am very keen to ensure that Helen Rollason widens its reach across all communities in Essex and offers support services that are effective and based on the most up-to-date scientific evidence.

Dave Johnson

I have always wanted to give something back following a corporate career in business development for technical services within the automotive industry.

I joined HRCC as a trustee to offer support and guidance to the very capable management team. It is nice to share my experiences and It is rewarding to see the team grow and deliver such important services.

Ben Schneider

I have been involved with HRCC for 15 years, initially through providing corporate sponsorship for fundraising events and then as a member of the Board, acting as Chair between 2020 and 2024.

With over 25 years’ experience as a Company Director in the Tech sector, I aim to bring my expertise in strategy, governance and digital transformation to support the charity in striving towards Helen’s vision of making good quality of life while coping with cancer available to everyone.

Andy Higgs

I have worked in the IT industry for over 14 years and before that, was a long-term retail manager so I have a broad range of experience to contribute to my trustee role, across the operations and retail areas. I am a husband and father of two and having lived in Chelmsford for many years, I really appreciate the opportunity to work with an excellent local charity.

My family has a deep connection with the charity as my wife, Kerry works in the Hatfield Peverel Centre and one of the family, who previously used the services, now volunteers. We’ve also been known to jump on bikes and get involved as we’ve all taken part in the Ride For Helen event over the years.

I am one of the newer trustees but I’m looking forward to contributing to the Charity’s purpose and goals.